Sunday, March 28, 2010

Miracle for Mateo


On October 5, 2009 Mateo Sebastain Paredes was born on 10/05/09 with Hypoplastic Left Heart Syndrome, a condition in which only the right side of his heart developed. Only 1 in 10,000 children are born with this condition. In the days following, this brave little soul who has affectionately been dubbed "Super Mateo" began his fight for life.


Mateo had open heart surgery on 10/08/09 for HLHS and to attach the Pulmonary Veins to his heart but, has continued to face set-backs. Over the past few months, Mateo and his family; mother Jeanette, father Jonathan and sisters Marielena and Britney, anxiously awaited and prayed for a heart transplant for this young child. The family moved their entire life to the hospital to be with Mateo and affectionately termed themselves Team Mateo! Mateo was finally moved to the (CCU) Cardiac Care Unit from the CICU where they awaited a heart for Mateo. Unfortunately, Mateo had a stroke while waiting for his new heart, the doctors telling the family Mateo is now blind and suggesting he be sent home, the doctors uncertain of his future.


All the Paredes Family has asked for is the prayer and hopes of their friends, families and community. However, all too often stories like Mateo's are overshadowed by the bigger issues and organizations, which leave families like The Paredes to struggle in trying to reach out to people who can make a difference. This is why telling their story is vital not only to the recognition of HLSH but for people to realize even though the world is getting bigger, the focus still needs to be on those in our communities and lives, because without the growing strength and love The Paredes have been shown over the past few months, Mateo may not be where he is today.


Despite the skepticism of many of his doctors, Mateo continues to beat the odds each day! This past week, Mateo had a echo and chest xray to determine how his pulmonary veins and heart are now functioning. This in itself is a small victory for the family who at one point believed Mateo may never get to see his home or his bedroom.



You can watch Mateo's story on one true media:


http://www.onetruemedia.com/shared?p=9c17863716f78e16712a9a&skin_id=601



A benefit dinner for The Paredes Family will be held on Friday, April 16, 2010 at The Washington Club in Penns Grove, NJ. The evening will include a Spaghetti Dinner, DJ dancing and the Silent Auction. The money raised from this event and auction will help ease the financial stress that no family should have to bear. But, with your help, we can offer the family continued strength, hope and time for Mateo by lessening their financial burdens and allowing them every precious moment possible with their son.


The benefit organizaers are asking businesses, organization, teams, celebrities and groups to contribute gift donations such as autographed items, gift baskets, gift certificates, event tickets of any size and/or amount. If you are able to make a contribution to this event, please contact me prior to April 10, 2010.


You can read The Paredes Family Story in issues of Gloucester County Times and The Sunbeam, as well as seeing the benefit listed on 92.5 WXTU Philadelphia website!


More information about Baby Mateo and the benefit, you may the event page:

http://www.facebook.com/event.php?eid=342651517474&ref=mf



The event details are as follows:


“Paredes Benefit Dinner”

Dinner, dancing & Silent/Chinese Auction

at the Washington Club

~ $25 for adults ~ $10 for kids~

April 16, 2009 ~ 6-10 pm

72 N. Virginia Avenue, Penns Grove, NJ 08070

For additional info on this event, follow the link below

http://www.facebook.com/?ref=home#!/event.php?eid=342651517474

Donations can be made to "Miracle For Mateo Paredes" at any Salem County branch of “The Bank”.




If you would like to schedule an interview and/or would like more information about Mateo and The Paredes Family, please contact:


Ashley Tabeling

Donation/Publicity Coordinator

Paredes Family Benefit

Phone: 856-834-4656

Email: jerz0101@yahoo.com




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Wednesday, March 03, 2010

Magazine Interview for PCOS

I am looking for women with PCOS between 20-30 years old to be interviewed by Glamour Magazine. If you are interested in being interviewed... Send me a private message on facebook with a one paragraph overview of how and when you were diagnosed (please no longer than two paragraphs), your email, your phone number and the best time to contact you. Thanks ladies and be sure to keep reading Glamour Magazine, over the years they have done a wonderful job of helping get the word out about PCOS!!!!


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Tuesday, February 02, 2010

Returning to the PCOS Scene

After a too long sabbatical, I have decided to get back on the PCOS train again and start posting info, links, opinions and interviews...

So, keep an eye out for some new and improved entries, Im looking forward to helping bridge the gap once more between professionals and patients!!!

Anything you want to know or want to see, shoot me a line or look me up and add me on facebook!

Peace,
Ashley

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Wednesday, July 18, 2007

PCOS and Cardiac Risk




A study conducted by the Royal Free and University College Medical School in London found that women with PCOS were nearly twice as likely to suffer from atherosclerosis (plaque deposits in the arteries), than women without the syndrome. Atherosclerosis sharply increases the risk of coronary heart disease and stroke."The implication is that a common condition thought to be primarily a gynecological problem may predispose women to heart disease," says lead author Paul Hardiman, M.D., a Senior Lecturer in obstetrics and gynecology.


Coronary heart disease is the largest killer of men and women in the United States, according to the American Heart Association. Previous research has linked PCOS, which is one of the most common causes of infertility in reproductive aged women, with multiple risk factors for coronary heart disease, including Diabetes, obesity and hypertension. Women with PCOS often have elevated cholesterol levels, high blood pressure, obesity and of course, Insulin Resistance, which is the underlying cause of PCOS.


Insulin Resistance increases a person's risk of developing Type 2 Diabetes, and this condition sharply increases the risk of heart disease. Previous research has estimated that these factors can cause up to a seven-fold increase in risk for heart attack for women with PCOS compared to those without it. In the London study, there was no significant difference in age or in total cholesterol, HDL ("good") or LDL ("bad") cholesterol among the groups taking part. However, compared to women with normal ovaries, those with PCOS had significantly higher weight, blood pressure and insulin levels.Researchers have found that PCOS, with its symptomatic disorders of hypertension, excessive fat tissue in and around the abdominal area, blood fat disorders (high triglycerides and low HDL), high blood pressure, Hyperandrogenism (elevated levels of male hormones) and Insulin Resistance, put sufferers at higher risk of developing future serious, life-threatening health conditions such as coronary heart disease and stroke.


Coronary heart disease (CHD) is a broad term that describes any disorder that can impact the functioning of the heart muscle itself or the cardiovascular system. Conditions that contribute to heart disease include: high blood pressure, Cardiovascular Disease, arteriosclerosis (hardening of the arteries), atherosclerosis and more. The causes of heart disease include: elevated LDL cholesterol, low HDL cholesterol, obesity, elevated blood pressure, Diabetes, cigarette smoking and lack of physical activity - many of the underlying conditions found in both PCOS and Insulin Resistance.Chronic high levels of glucose and insulin are classic symptoms of Insulin Resistance and PCOS.


One of the primary risk factors for arteriosclerosis is an elevated level of triglycerides and the biggest risk factor for increasing the production of triglycerides is the rate of your insulin secretion.Insulin is produced in your pancreas and released into the circulatory system where it is the key to the absorption of glucose by your cells. If your cells resist insulin, both insulin and glucose build up in your blood. Excess insulin leads to weight gain and high blood pressure - both precursors to heart disease. As insulin comes in contact with the interior wall of the arteries, it damages the tissue, causing the initial injury that produces plaque. Therefore, having Insulin Resistance and PCOS directly cause changes in the blood lipids and overall cardiovascular health that contribute to the formation of heart disease.


Recommendations for reducing heart disease risk are the same as those for reducing Insulin Resistance: decreasing insulin, balancing cholesterol and lowering blood pressure. It all involves managing PCOS to minimize current symptoms and an attempt to delay or prevent worsening of the underlying conditions that lead to heart disease. This can be done through careful food choices, exercise and weight loss in overweight individuals. But a multi-faceted approach is clearly necessary to address all the symptoms of these conditions.


To learn more about PCOS, please visit Project PCOS http://www.projectpcos.org/


Find out how you can help and/or partner with us!

Saturday, July 07, 2007


PCOS News Alerts





Project PCOS Announces the July Spotlight

Project PCOS is excited to bring you yet another community spotlight! This month Jennifer Mervyn shares an intimate portfolio of life with PCOS from diagnosis to successfully managing and controlling PCOS Symptoms. We invite you to read Jennifer's story and thank all of the wonderful community members who have shared there PCOS stories, thoughts and opinions to make our community spotlight a success.




Read Jennifer's Story here

Read More.



Kate Marsh is The Project PCOS Professional Spotlight for July







Project PCOS is thrilled to introduce or July Spotlight with Kate Marsh, an advanced accredited practicing dietician and credentialed diabetes educator. Kate is well known for her work as co-author of The Low GI Guide to Managing PCOS, The Low GI Vegetarian Cookbook, Low GI Gluten-Free Living and the new PCOS Made Easy CD, and educational nutrition and exercise CD program for women with PCOS, which will be featured for sale on The Project PCOS website shortly! To learn more about Kate, including The PCOS Health and Nutrition Center she founded http://www.pcoshealth.com.au/ , we invite you to read our

July Professional Spotlight

Read More.


PCOS and Project PCOS featured on




Project PCOS is proud to announce a new site, newsletter and forums which are using technology to inform, educate and have fun - The Five Minute Lifestyle, which is featuring PCOS in their podcast and newsletter.

Read More.



Project PCOS to speak at WOMEN'S HEALTH PROGRAMS & SERVICES Conference July 18-20 in Chicago, IL

Project PCOS's executive Director Linda Harvey will take part in a National Women's Health Conference Focused on Exploring The Latest Developments For Managing A More Competitive and Comprehensive Women's Health Program to Increase Patient Volume, Improve Outcomes and Excel in Total Patient Care.

Read More.


Discarding the Term PCOS

In November 2006 Dr. David Walmer along with two other physicians published an article called Estrogenic ovulatory dysfunction or functional female hyperandrogenism: an argument to discard the term polycystic ovary syndrome. You can read the article here .

Read Dr. Walmers full biography.

Read More.

Review all of the Project PCOS news articles

A little TLC for PCOS


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Exploring alternative options for treating PCOS.


Over the past few years, it has become increasingly evident that PCOS is not only complicated to diagnose but, treat as well. Medications have been very effective in helping women with the syndrome combat many of the symptoms associated with PCOS however for many women, the effectiveness does not always last using medication, alone.

As result, there has been an emergence of information and tools to help women and girls control PCOS through lifestyle change. Lifestyle change has been clinically proven to reduce insulin sensitivity in patients with PCOS, allowing them to alleviate many of the symptoms such as weight, acne, infertility and irregular menstrual cycles.

Dr. Dennis Gage, a Project PCOS Expert ,Author of The Thinderella Syndrome and Director of The Thinderella Lifestyle Change Program (TLC), is helping women and girls with PCOS by providing the tools for success through his TLC Program, which exclaims, “Don’t do a diet, live a diet”. Dr. Gage explains, “Dieting itself connotates the concept of a restrictive pattern that is to last for a certain amount of time and then is to be completed. It is as if the patient has a finite amount of time to spend on the diet and then it's over. However it is really the lifestyle change or the everyday patterns that a person goes through that dictates what they are going to weigh.”

Through the TLC Program, these lifestyle changes are what ultimately dictates success. This program is more than controlling carbohydrates and sugars, it is the development of lifestyle pattern, which will ultimately help patients live healthier lives by engaging them in become active participants in their health.

To learn more about the TLC Program and Dr. Gage please visit:

http://www.thethinderellasyndrome.com/tlc_weight_loss_program.html


To be entered in our Contest to win a free copy of Dr. Gage's Book
The Thinderella Syndrome, please send an e-mail to info@projectpcos.org
with Thinderella contest in the subject line and let us know how you found out about this contest!

Check back next month for our next book review and contest!

PCOS Made Easy CD Review












Kate Marsh and Dr. Adam Fraser have masterfully created a guide to help women and girls with PCOS achieve healthier and happier lives with polycystic ovary syndrome. The CD " PCOS Made Easy", is a wealth of information about PCOS, PCOS Symptoms and how PCOS can affect the body. This however should not be mistaken as a PCOS overview, as it is so much more. It provides the tools women and girls need to help conquer the symptoms, leading to better health and control of PCOS.

It is very important for girls and women living with the syndrome to understand that PCOS is an endocrine (metabolic) disorder and it is not always simply controlled by taking medications, rather it requires changes to lifestyle to help maximize health and successful treatment.

Along with this rather enjoyable exploration of PCOS and the PCOS Lifestyle, the listener is also provided with a data disc that offers one of the most comprehensive set of tools for women and girls to develop a plan that will work for them including nutritional guides, exercise tips and tricks, cooking tips and facts on foods.

This CD empowers women and girls with PCOS by making information and tools accessible, understandable and most importantly, enjoyable. I believe it is an invaluable resource and am looking forward to incorporating it in to my own plan for better health with PCOS.

The CD will be available for sale through the Project PCOS website over the next week! $5.00 of every U.S. sale will be donated to Project PCOS and $5.00 of every Australian sale will be donated to POSAA.

Sign up to receive the CD release alert and you could win a free copy of this CD set!!

There are two chances to win!!!

Send an e-mail to info@projectpcos.org with CD alert in the subject line.

Winners will be contacted via e-mail and announced on The Project PCOS Website on July 15!

Good Luck!

Tuesday, April 17, 2007

PCOS Experts Answer your questions

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PCOS Experts Answer your questions

Project PCOS is thrilled to be working with a diverse group of experts from around the world, specializing in PCOS, PCOS symptoms and treatments for PCOS and PCOS Symptoms.
Project PCOS offer an Ask the Experts Section, which allows community members and visitors to our site and forums and have one on one communication with medical professionals, practioners and advocates who are dedicated to ensuring women and girls with PCOS receive the information and answers they need to live healthier and happier lives with PCOS.
Some of the recent questions and experts that have been featured in our ask the experts forum are as follows:

Question- Is either Mirena or Paragard better for helping control PCOS symptoms? Or, is it just effective for birth control?



Dr. Mark Trolice answers - Mirena is a very good option for PCOS patients because it release a continuous dose of a synthetic progestin to counter the unopposed build up of the lining of the uterus (endometrium) by estrogen stimulation from the ovaries due to ovulation dysfunction. Paraguard does not have hormones and will not be effective at prevening the endometrial risk of hyperplasia - a precancerous condition (excessive build up of the lining of the uterus).

QUESTION What causes the cysts on the ovaries and can they go away?

Dr. Suhail Doi Answers - The polycystic ovary is characterized by an increased number of small antral follicles compared with normal ovaries, with 10--12 follicles in a single plane on ultrasound. These follicles are not atretic, rather, their growth is prematurely arrested, resulting in failure of dominant follicle development and reflects failure of ovulation. There are many theories for the latter, but I believe that the abnormal steroid mileu within the ovary in PCOS is to blame. They usually get better as women with PCOS get older and eventually go away. However, these cysts are a consequence of the problem and not a cause and as such do not correlate with symptoms or severity and are only useful in making a diagnosis of PCOS.

QUESTION

Why is it difficult to loose weight with PCOS

Dr. Shahab Minassian Answers:As for difficulty losing, this is not easy to answer if the specific person's situation is not known (what are they really doing to control their PCOS and how hard are they working on it?; how high is their BMI?). But, generally speaking, it requires a full review of the type and amount of efforts used in weight loss: diet and exercise. And, if they are on medication (metformin). We find that the most likely reason that patient do not lose weight is the lack of committment to an exercise program, followed by poor dietary efforts. Some of them are undermedicated. Over many years of treatinf patients it is becoming clearer to us at our center that PCOS weight loss efforts are global: medicine - standard doses of metformin, exercise - cardio, sweat-breaking, fast heart rate, at least 20-30 minutes and up, and diet- lower carb,although there is decent evidence that low calorie diets themselves are good too. Finally, if the BMI is really high, say over 40, short of a supreme effort above (not easy for us) gastric bypass surgery may be a good option.

To read more questions and answers or to submit your own question for our experts, please visit our Ask the Experts Forum

Yasmin you traitor

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Yasmin, You Traitor!

REPOSTED FROM BLOG - http://j-inconceivable.blogspot.com/2007/03/yasmin-you-traitor.html



I just read a article by Drs. Warren Kidson and Dr. James Mackenzie Talbot entitled "The Polycystic Ovary Syndrome - a starting point, not a diagnosis."
In this article the doctors suggest the oral contraceptives make insulin resistance worse. Then, as if that weren't disturbing enough for someone who was on the pill for 7 years, they name Yasmin the worst of the bunch, citing a report that suggests it raises blood glucose levels by 19%! DAMN YOU YASMIN!

I took (and paid full price for) Yasmin faithfully from 2003 to 2006. Two different OBGYNs touted it as the best birth control going and all along it was making a condition I didn't even know I had worse? Shit!

Also, another cool PCOS-related blog I found is Project PCOS Blog.

Wednesday, February 28, 2007

Project PCOS invites experts from around the globe

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On February 1, 2007 Project PCOS unveiled what is quickly becoming a definitive resource for information, awareness and support for polycystic ovary syndrome.
Not only does Project PCOS offer an array of resources for PCOS including their Q&A page to tools for managing life with PCOS, it also gives Professionals from around the globe an opportunity to share tips, research and most importantly perspectives on PCOS, PCOS Symptoms and PCOS treatments and management.

Ashley Tabeling, founder of Project PCOS says, "Information is a key component to understanding, accepting and managing PCOS". She goes on to say, "Armed with the proper resources, women and girls can make informed decisions about their health and the best treatment options for their situations."

In wanting to provide comprehensive resources for the visitors of this new website, Project PCOS bgan partnering with some of the leading experts, organizations and advocates for PCOS, symptoms associated with PCOS and treatments for PCOS.

Among the leading professionals are Dr. Samuel Thatcher, a respected member of the international scientific community that has received national recognition as an educator and patient advocate, as well as the author of the comprehensive consumer oriented bestselling book on PCOS “PCOS: The Hidden Epidemic”. Dr. Thatcher talks about PCOS and management as the March professional of the month on the Project PCOS website stating, " Learn all you can. The Internet and patient advocacy groups such as Project PCOS are invaluable. Beware of quick fixes, or unsupported boasting, and anecdotal reports. Some general rules about PCOS are emerging, but each individual with PCOS is unique."

Project PCOS realizes this very important fact, that each individual with PCOS is in fact unique and what may work for one person may not work for another. It is refreshing to see so many resources, options and perspectives.

Dr. Dennis Gage, anther well known and well respected expert reveals the unfortunate fact that PCOS is often mislabeled which also can lead to terrible medical issues such as metabolic syndrome, cardiovascular disease, and diabetes. This is why having all the information about PCOS in one place, just as Project PCOS was set up to do, is going to be crucial as more and more are afflicted with it in the coming years.

Some of the experts and personalities who have signed on to help with this iwebsite nclude Dr. Charles Glueck, the Director of the Jewish Cholesterol Center, Julie Lenz, The PCOS coach, Dr. Katherine Sherif, co-director of the PCOS Center at Drexel, Angela Grassi, A PCOS Nutrtionist, Woolsey from After the Diet, Kelly Bliss from KellyBliss.com, Drs. Deborah and Spencer Ward, Dr. Adam Balen Professor of Reproductive Medicine and Surgery Leeds Teaching Hospital, Hansi Halloway, Ms. Plus Sized NC 2004, Tulin Reid, founder, PCOS Living and plus-size model, Dr. Shahab Minassian, Director of Drexel Fertility, Claire, the great-granddaughter of Dr. Irving Stein from the Stein-Leventhal Syndrome, Jennie Brand Miller and Kate Marsh, co-authors of numerous publications including the best selling New Glucose Revolution Guide to Living Well with PCOS, Angela Lawlor author of PCOS Fighting Back, Dr. David Ehrmann Director, University of Chicago PCOS Center, Fiona Young- Brown, Infertility Life Coach, Dr. William Clayton, associate Specialist in Dermatology at Royal Free Hospital and Dr. Evanthia Diamanti-Kandarakis a leading researcher in the field of PCOS

You can log on to Project PCOS to read excerpts from these experts located through the Project PCOS website

If you are an expert or know an expert in the field of PCOS, PCOS treatments and/or PCOS management, contact us to find out how to get involved information@projectpcos.org or visit our website Project PCOS and click on our partners button!